Privacy

We are committed to safeguarding the privacy of our website visitors; this policy sets out how we will treat your personal information.


What information do we collect?

We may collect, store and use the following kinds of personal information:

Information about your computer and about your visits to and use of this website (including your IP address, geographical location, browser type and version, operating system, referral source, length of visit, page views and website navigation).

Information that you provide to us for the purpose of accessing our website services, email notifications any other information that you choose to send to us.

Cookies

Our website uses cookies. By using our website and agreeing to this policy, you consent to our use of cookies in accordance with the terms of this policy.

A cookie consists of a piece of text sent by a web server to a web browser, and stored by the browser. The information is then sent back to the server each time the browser requests a page from the server. This enables the web server to identify and track the web browser.

We use Google Analytics to analyse the use of this website. Google Analytics generates statistical and other information about website use by means of cookies, which are stored on users’ computers. The information generated relating to our website is used to create reports about the use of the website. Google will store this information. Google’s privacy policy is available at: https://policies.google.com/privacy

Most browsers allow you to reject all cookies, whilst some browsers allow you to reject just third party cookies. Blocking all cookies will, however, have a negative impact upon the usability of many websites, including this one.

Using your personal information

Personal information submitted to us via this website will be used for the purposes specified in this privacy policy or in relevant parts of the website.

We may use your personal information to:

Administer the website;

Improve your browsing experience by personalising the website;

Enable your use of the services available on the website;

Send you email notifications which you have specifically requested;

Deal with enquiries and complaints made by or about you relating to the website;

Disclosures

We may disclose information about you to any of our employees and officers, insofar as reasonably necessary for the purposes as set out in this privacy policy.

In addition, we may disclose your personal information:

To the extent that we are required to do so by law;

In connection with any legal proceedings or prospective legal proceedings;

In order to establish, exercise or defend our legal rights (including providing information to others for the purposes of fraud prevention and reducing credit risk);

To the purchaser (or prospective purchaser) of any business or asset that we are (or are contemplating) selling;

Except as provided in this privacy policy, we will not provide your information to third parties.

Security of your personal information

We will take reasonable technical and organisational precautions to prevent the loss, misuse or alteration of your personal information.

Policy amendments

We may update this privacy policy from time-to-time by posting a new version on our website. You should check this page occasionally to ensure you are happy with any changes.

Your rights

You may instruct us to provide you with any personal information we hold about you. Provision of such information will be subject to:

the supply of appropriate evidence of your identity (for this purpose, we will usually accept a photocopy of your passport certified by a solicitor or bank plus an original copy of a utility bill showing your current address);

 Opting out

You may instruct us not to process your personal information for marketing purposes, by sending an email to us at charlotte.roy@mndassociation.org. In practice, you will have expressly agreed in advance to our use of your personal information for marketing purposes. We will provide you with an opportunity to opt-out of the use of your personal information for marketing purposes by emailing charlotte.roy@mndassociation.org or clicking on the unsubscribe link found in the email communications sent to you.

Third party websites

The website contains links to other websites. We are not responsible for the privacy policies or practices of third party websites. Please read the privacy statements provided by other websites before providing information to them.

Updating information

Please let us know if the personal information which we hold about you needs to be corrected or updated.

Contact

If you have any questions about this privacy policy or our treatment of your personal information, please write to us by email to charlotte.roy@mndassociation.org, by phone on 01604 611696 or by post to Charlotte Roy at TUDCA-ALS c/o MND Association, Francis Crick House, 6 Summerhouse Road, Moulton Park, Northampton, NN3 6BJ.

 

Last Updated 17 March 2022